Living With Learning Disabilities, Dying With Cancer:

Name: Living With Learning Disabilities, Dying With Cancer:
Price: 17.25 USD
Availability: InStock
ISBN: 9781849050272

ISBN-10: 1849050279

ISBN-13: 9781849050272

Edition: 2009

Authors: Irene Tuffrey-wijne

List price: $34.95

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Description:

This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author followed their lives as part of a 3-year research study, during which 10 people died. She spent extensive periods of time with them at their homes and day centres, in hospitals, hospices and nursing homes. In this way she gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers. How was each person's cancer diagnosed? How was their cancer and its implications explained to them? How much did they understand and how did…

Book details

List price: $34.95
Copyright year: 2009
Publisher: Jessica Kingsley Pub
Binding: Paperback
Pages: 256
Size: 5.75" wide x 8.75" long x 0.75" tall
Weight: 0.880
Language: English



Acknowledgements


Foreword



Preface



Three Stories




Diagnosis and Treatment


Lily Lamb


The cancer diagnosis


Cancer treatments


Summary



Truth-telling and Understanding


Lily Lamb's understanding of cancer


Were people told the truth?


Understanding cancer and dying


Sally Burnett: 'Don't tell her'


Breaking bad news


Summary



Family and Friends


Lily Lamb and her family


The importance of families


Pete Carpenter and his sister Daphne


Friends


Summary



Unprepared Services, Inexperienced Carers


Lily Lamb and her carers


Pete Carpenter and his carers


Services were not prepared for death


The emotional impact of caring


Health care professionals


Summary



Dependent Lives


The story of Lily Lamb's life


Deprivation and dependence


Forced jollity


The importance of listening


Summary



Resilience


Richard Horwood: 'Don't ever give up'


The features of resilience


Summary



Dying and Beyond


Lily Lamb's death


Dying


Funerals


Grieving and remembering


Summary



Learning Lessons


What did people want and need?


Conclusion



The People In This Book



Methods


Endnotes


Resources


References