Parents' Guide to CFIDS How to Be an Advocate for Your Child with Chronic Fatigue Immune Dysfunction Syndrome

Name: Parents' Guide to CFIDS How to Be an Advocate for Your Child with Chronic Fatigue Immune Dysfunction Syndrome
Availability: OutOfStock
ISBN: 9780789006318

ISBN-10: 0789006316

ISBN-13: 9780789006318

Edition: 1999

Authors: David S. Bell, Mary Z. Robinson, Jean Pollard, Thomas A. Robinson, Bonnie Floyd

List price: $100.00

30 day, 100% satisfaction guarantee!

Out of stock

We're sorry. This item is currently unavailable.

what's this?

Rush Rewards U
Members Receive:

You have reached 400 XP and carrot coins. That is the daily max!

Description:

A Parents’Guide to CFIDS is the only complete book for parents of children with CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Written in a friendly, personal manner by parents for parents, A Parent?s Guide to CFIDS combines medical, parental, and personal experiences designed to minimize the negative effects of socialization and education on children with CFIDS. This guide will assist you in understanding CFIDS, also known as Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME), one of the most complicated illnesses in medical history. You will learn how to help your child overcome the major academic challenges of CFIDS and the socialization issues inflicted by being cut off from…

Book details

List price: $100.00
Copyright year: 1999
Publisher: CRC Press LLC
Publication date: 3/8/1999
Binding: Hardcover
Pages: 162
Size: 6.50" wide x 9.00" long x 0.75" tall
Weight: 1.034
Language: English



About the Authors


Acknowledgments


Introduction


Personal Issues Surrounding Cfids



How Do You Know If Your Child Has CFIDS?


The Symptoms


Differences Between Children and Adults with CFIDS


Inaccurate Diagnoses



CFIDS: The Misunderstood Illness



How to Balance Your Family Life When You Have a Child with CFIDS


The YPWC


The Special Problems of Being a Brother or Sister of a YPWC


Your Changing Role As a Parent of a YPWC



How to Be Your Child's #1 Advocate


How to Have a Good Relationship with Your Child's Doctor


How to Be Your Child's Advocate at School


Further Considerations



Helping Your YPWC Develop Socially


The Healthy Child's Socialization


Social Issues for the YPWC



YPWCs and Parents Speak About Developmental Stages of Coping with CFIDS


Obtaining a Diagnosis


Coming to Terms with CFIDS


Denial


Losses and Grieving


Depression


Anger


Fighting the Diagnosis


Reaching Out and Sharing


Identity Formation


Acceptance


Educational Issues Surrounding Cfids



Deciding How Much Your Child Can Do


How Many Hours of School Can Your YPWC Manage?


Scheduling Your YPWC's Daytime Hours



Discussiong Some of Your Child's Educational Options


Working with the Staff on a Day-to-Day Basis


Become Aware of Laws Pertaining to Education



Evaluating Intellectual Abilities


Standardized Tests


Preparing for Testing


Interpreting Performance


Epilogue: Look How Far We've Come


Appendixes



Chronic Fatigue Immune Dysfunction (CFIDS) Health Questionnaire for School Personnel



Chronic Fatigue Immune Dysfunction (CFIDS) Organizations and National Support Groups



On-Line Resources



Letters to the School from the Physician



Educational Resources



List of Abbreviations/Acronyms



Seventy-Five Tips for Coping with CFIDS in Children--From Pain to Schoolwork



Sample 504 Plans and IEP



Educational Citations


Index