| Introduction | p. 1 |
| Overview | p. 1 |
| Organization | p. 3 |
| Scope | p. 3 |
| Moving Forward | p. 4 |
| The Essentials | p. 7 |
| The Essentials on Sjogren's Syndrome: Guidelines | p. 9 |
| Overview | p. 9 |
| What Is Sjogren's Syndrome? | p. 10 |
| What Are the Symptoms of Sjogren's Syndrome? | p. 12 |
| Who Gets Sjogren's Syndrome? | p. 13 |
| What Causes Sjogren's Syndrome? | p. 13 |
| How Is Sjogren's Syndrome Diagnosed? | p. 13 |
| What Type of Doctor Diagnoses and Treats Sjogren's Syndrome? | p. 16 |
| How Is Sjogren's Syndrome Treated? | p. 16 |
| What Other Parts of the Body Are Involved in Sjogren's Syndrome? | p. 19 |
| Does Sjogren's Syndrome Cause Lymphoma? | p. 24 |
| What Research Is Being Done on Sjogren's Syndrome? | p. 25 |
| Where Can I Find More Information? | p. 26 |
| More Guideline Sources | p. 30 |
| Vocabulary Builder | p. 37 |
| Seeking Guidance | p. 43 |
| Overview | p. 43 |
| Associations and Sjogren's Syndrome | p. 43 |
| Finding More Associations | p. 49 |
| Finding Doctors | p. 51 |
| Finding a Rheumatologist | p. 52 |
| Selecting Your Doctor | p. 53 |
| Working with Your Doctor | p. 53 |
| Broader Health-Related Resources | p. 55 |
| Vocabulary Builder | p. 55 |
| Clinical Trials and Sjogren's Syndrome | p. 57 |
| Overview | p. 57 |
| Recent Trials on Sjogren's Syndrome | p. 60 |
| Benefits and Risks | p. 68 |
| Keeping Current on Clinical Trials | p. 71 |
| General References | p. 72 |
| Vocabulary Builder | p. 73 |
| Additional Resources and Advanced Material | p. 75 |
| Studies on Sjogren's Syndrome | p. 77 |
| Overview | p. 77 |
| The Combined Health Information Database | p. 77 |
| Federally-Funded Research on Sjogren's Syndrome | p. 86 |
| E-Journals: PubMed Central | p. 99 |
| The National Library of Medicine: PubMed | p. 99 |
| Vocabulary Builder | p. 101 |
| Books on Sjogren's Syndrome | p. 107 |
| Overview | p. 107 |
| Book Summaries: Federal Agencies | p. 107 |
| Book Summaries: Online Booksellers | p. 113 |
| The National Library of Medicine Book Index | p. 115 |
| Chapters on Sjogren's Syndrome | p. 117 |
| General Home References | p. 119 |
| Vocabulary Builder | p. 120 |
| Multimedia on Sjogren's Syndrome | p. 123 |
| Overview | p. 123 |
| Video Recordings | p. 123 |
| Bibliography: Multimedia on Sjogren's Syndrome | p. 126 |
| Vocabulary Builder | p. 127 |
| Periodicals and News on Sjogren's Syndrome | p. 129 |
| Overview | p. 129 |
| News Services & Press Releases | p. 129 |
| Newsletters on Sjogren's Syndrome | p. 132 |
| Newsletter Articles | p. 133 |
| Academic Periodicals covering Sjogren's Syndrome | p. 140 |
| Vocabulary Builder | p. 142 |
| Physician Guidelines and Databases | p. 145 |
| Overview | p. 145 |
| NIH Guidelines | p. 145 |
| NIH Databases | p. 146 |
| Other Commercial Databases | p. 153 |
| The Genome Project and Sjogren's Syndrome | p. 153 |
| Specialized References | p. 158 |
| Vocabulary Builder | p. 159 |
| Dissertations on Sjogren's Syndrome | p. 161 |
| Overview | p. 161 |
| Dissertations on Sjogren's Syndrome | p. 161 |
| Keeping Current | p. 162 |
| Appendices | p. 163 |
| Researching Your Medications | p. 165 |
| Overview | p. 165 |
| Your Medications: The Basics | p. 166 |
| Learning More about Your Medications | p. 168 |
| Commercial Databases | p. 169 |
| Contraindications and Interactions (Hidden Dangers) | p. 170 |
| A Final Warning | p. 171 |
| General References | p. 172 |
| Researching Alternative Medicine | p. 173 |
| Overview | p. 173 |
| What Is CAM? | p. 173 |
| What Are the Domains of Alternative Medicine? | p. 174 |
| Can Alternatives Affect My Treatment? | p. 177 |
| Finding CAM References on Sjogren's Syndrome | p. 178 |
| Additional Web Resources | p. 186 |
| General References | p. 187 |
| Vocabulary Builder | p. 188 |
| Researching Nutrition | p. 191 |
| Overview | p. 191 |
| Food and Nutrition: General Principles | p. 192 |
| Finding Studies on Sjogren's Syndrome | p. 196 |
| Federal Resources on Nutrition | p. 200 |
| Additional Web Resources | p. 201 |
| Vocabulary Builder | p. 201 |
| Finding Medical Libraries | p. 203 |
| Overview | p. 203 |
| Preparation | p. 203 |
| Finding a Local Medical Library | p. 204 |
| Medical Libraries Open to the Public | p. 204 |
| Your Rights and Insurance | p. 211 |
| Overview | p. 211 |
| Your Rights as a Patient | p. 211 |
| Patient Responsibilities | p. 215 |
| Choosing an Insurance Plan | p. 216 |
| Medicare and Medicaid | p. 218 |
| NORD's Medication Assistance Programs | p. 221 |
| Additional Resources | p. 222 |
| Online Glossaries | p. 223 |
| Online Dictionary Directories | p. 224 |
| Sjogren's Syndrome Glossary | p. 227 |
| General Dictionaries and Glossaries | p. 245 |
| Index | p. 247 |
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