Woman Who Walked into the Sea Huntington's and the Making of a Genetic Disease
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Description: When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.
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All the information you need in one place! Each Study Brief is a summary of one specific subject; facts, figures, and explanations to help you learn faster.
List price: $29.00
Copyright year: 2010
Publisher: Yale University Press
Publication date: 1/26/2010
Size: 6.25" wide x 9.25" long x 1.00" tall
|The Death of Phebe Hedges|
|The Social Course of St. Virus's Dance|
|Inventing Hereditary Chorea|
|Chorea and the Clinical Gaze|
|The Eyes of|
|Myths of Origins and Endings|
|List of Abbreviations|