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Courage to Care A Caregiver's Companion Through the Stages of Alzheimer's

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ISBN-10: 0028642023

ISBN-13: 9780028642024

Edition: 2001

Authors: Joanne Parrent

List price: $14.95
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Book details

List price: $14.95
Copyright year: 2001
Publisher: Penguin Publishing Group
Publication date: 7/1/2001
Binding: Paperback
Pages: 360
Size: 7.75" wide x 9.50" long x 1.25" tall
Weight: 1.298
Language: English

What Is Alzheimer's?
Alois Alzheimer's Discovery
The Puzzling and Peculiar Formations
Alzheimer Reveals His Findings
The Continuing Puzzle of Alzheimer's
The Types of Alzheimer's
What Causes Alzheimer's?
A Cure in Sight?
Drugs: New and Old
Therapy and Lifestyle Changes
How This Book Will Help You
When to Worry: The Ten Warning Signs of Alzheimer's
Warning Sign Number One: Difficulty with Familiar Tasks
Warning Sign Number Two: Slipping Job Performance
Warning Sign Number Three: Language Difficulties
Warning Sign Number Four: Confusion of Time and Place
Warning Sign Number Five: Increasingly Poor Judgment
Warning Sign Number Six: Problems with Abstract Thinking
Warning Sign Number Seven: Misplacing Objects
Warning Sign Number Eight: Mood and Behavior Fluctuations
Warning Sign Number Nine: Changes in Personality
Warning Sign Number Ten: Lack of Initiative
The Importance of Early Diagnosis
How Affected People Try to Cope
Why It's Difficult to Diagnose Alzheimer's
The Causes of Dementia
Multi-Infarct Disease
Lewy Body Dementia
Pick's Disease
Parkinson's Disease
Other Causes of Dementia
Alcohol and Prescription Drugs
Environmental Toxins
Infections or Viruses
Tumors and Other Structural Disorders
Metabolic Disorders
Depression, Delirium, and Isolation
Reversible Dementias
A Diagnosis of Exclusion
The Diagnosis--a Frustrating Ordeal
Find the Right Doctors
The Medical History and Physical Exam
Neurological Exam
Lab Tests
Mental Status Test
Psychiatric and Neuropsychological Exams
The Possible Results
Mild Cognitive Impairment
It's Most Likely Alzheimer's Disease
Dealing with the Bad News
The Patient's Feelings
Acceptance or Denial
Shame or Guilt
Fear
Sadness and Grief
Depression
Frustration and Anger
Loneliness and Isolation
Your Feelings
Medical Support for the Patient
Prescription Drugs
Additional Treatments
Clinical Trials
Emotional Support for the Patient
Support for You
Plans for the Future
Financial Plans
What Will It Cost?
What Are Your Combined Resources?
Tax Issues
Government Programs
Other Income Sources
Legal Plans
Durable Power of Attorney
Living Trust
Medical and Nursing Care Plans
Spiritual and Emotional Plans
What to Expect in Stage 1
Difficulty with Routine Tasks
When to Stop Driving
When to Stop Working
What to Wear
Increasing Memory Loss
Losing and Hiding Things
Getting Lost and Wandering
Emotional Changes
Odd and Inappropriate Behavior
Rummaging Through Things
Stealing and Accusations
Sexual Behavior and Nudity
Physical Changes
General Guidelines for Caring for Alzheimer's Patients
Cooperate with the Patient's Wishes
Stick to Daily Schedules
Plan Meaningful Activities
Music
Gardening
Reminiscing
Quiet Time
Children and Pets
Create a Calm and Stable Environment
Establish Good Verbal and Nonverbal Communication
Stop Blaming
How Do You Survive Stage 1?
When You Are the Patient's Life Partner
Prepare for Practical Changes
Sexuality and Intimacy
When You Are the Patient's Child
Acknowledge Your Feelings
Join a Support Group
Keep a Journal
Keep Your Sense of Humor
Laughter
Fun
Ask for Help!
Getting Time Off
Getting Professional Help
Exercise and Eat Well
What to Expect in Stage 2
Some General Changes
Severe Memory Loss
Difficulty Communicating
Difficulty Speaking
Difficulty Understanding Speech
Physical Changes
Personality Changes
The Hygiene Nightmare
Eating
Personal Hygiene
Dealing with Difficult Behavior
Repetition
Already Asked and Answered
Been There, Done That
Clinging
Suspiciousness and Paranoia
Rage and Catastrophic Outbursts
Hallucinations or Delusions
Depression
Sexual Behaviors
Sundowning and Sleep Disturbances
How Do You Survive Stage 2?
Expressing Your Emotions
Anger
Sadness and Grief
Guilt
Identify Your Trigger Points
Love
Physical Reactions
Fatigue
Stress-Related Illness
When Is It Time to Get Help?
Avoiding Isolation
What to Expect in Stage 3
Severe Intellectual Impairment
Severe Speech Impairment
Very Little Awareness of Surroundings
Loss of Other Mental Functions
Refusal to Eat
Complete Dependency
Incontinence
Inability to Perform Most Activities Without Help
The Final Months
Medical Care Issues in Stage 3
Falls
Pressure Sores
Dental Problems
Vision and Hearing Problems
Dehydration
Constipation
Infections and Pneumonia
Before Death Comes
Medical Intervention
Feeding Tubes
Medication
Surgery
Resuscitation
Where Will the Patient Die?
The Last Moments
After-Death Decisions
Should There Be an Autopsy?
What Type of Funeral?
How Do You Survive Stage 3?
Are You Ready to Let Go?
There's Nothing Wrong with Feeling Relief
Guilt, Anger, and Depression
Guilt
Anger and Depression
Experiencing Sadness and Grief
Anticipatory Grief
Symptoms and Stages of Grief
Coping Strategies
How Long Does Grieving Last?
Moving On
If You Are Not the Primary Caregiver
Securing Your Home
General Safety Considerations
Is It Too Cluttered, Busy, or Noisy?
Is It Too Dark?
Is It Too Hot?
Is It Hazardous?
Is It Sharp, Slippery, or in the Way?
What Should Be Locked?
Stairways
The Bathroom
The Bedroom
The Kitchen
Outdoors
Other Issues
Fire Safety
Memory Aids
Mealtime Traumas
Planning and Preparing Meals
What to Serve
When to Eat
At the Table
How to Eat
Other Mealtime Problems
Choking
Feeding Someone Who Is Bedridden
Drinking
Personal Hygiene at Home
Getting Dressed
How You Can Help
What to Wear
Still Having Problems?
Personal Grooming
Hair
Shaving and Make-Up
Nails
Oral Hygiene
Bathing
Preparing the Bath
Tips for Successful Bathing
Dealing with Problems
When Accidents Happen
Why Accidents Happen
Dealing with Incontinence
Time Off: Getting Help for You
Help from Family and Friends
Help from Outside Providers
Home Aides--Where to Find Them
Agencies
On Your Own
How to Supervise Your Help
Adult Day Care
Vacations: Short-Term Respite Care
Moving the Patient in Advance of a Crisis
When Is the Right Time?
The Right Time for You
The Right Time for the Alzheimer's Patient
Involve Others in the Decision
Medical Professionals
Family Members
Involve the Person with Alzheimer's
Allow Time to Find the Right Place
Retirement Residence with Assisted-Living Program
Licensed Residential Care Home
Alzheimer's Dedicated Care Facility
Nursing Home with a Dedicated Alzheimer's Care Program
How to Choose the Right Nursing Home
The Level of Care Needed
Geographical Area
Licensing or Certification
Financial Considerations
Inspect the Facility
Physical Layout
Residents' Rooms
Bathrooms
The Staff
Medical Policies
General Policies and Considerations
Safety and Emergency Policies
Visiting Policies
Use of Physical and Chemical Restraints
Activities and Entertainment
Food Service
Moving In
A Smooth Transition
What to Bring
Spend Time at the Facility
Build Relationships with the Staff
The Patient's Reaction
Sometimes It's Traumatic
Sometimes It's Positive
Your Reaction
A Change, Not a Defeat
Express Your Feelings
When It's Your Partner
Deal with Your Overwhelming Loss
Don't Stay Isolated
Start to Build a Single Life
When It's Your Parent
Make Your Visits Count
Create a Regular Visiting Routine
Creative Ways to Connect
Bring a Favorite Food
Decorate the Patient's Room for Holidays
Personal Grooming for Fun and Relaxation
Bring Scrapbooks and Old Pictures
Outings
Visits During Scheduled Activities
Positive Feedback
How to Handle an Upsetting Visit
Keep in Touch with the Staff
The Present: Caring for Yourself Through It All
Empathy for You
Your Limits and Limitations
Staying in Balance
Signs of Stress
The Physical Part of Staying Healthy
Sleep and Relaxation
Diet
Exercise
Regular Medical Care
The Mental and Spiritual Parts of Staying Healthy
Meditation
Relaxation Exercises
Guided Imagery or Visualization
Breathing Exercises
Get a Massage
Be Good to Yourself
The Future: Is There Hope?
Solving Dr. Alzheimer's Puzzle
Tangles
Plaques
Clues from Gene Research
Clues from Mice Models
Making a Mouse Sick
A Promising Vaccine
Drugs
Secretase Inhibitors--Memapsin 2
Anti-Inflammatories and OX2
Estrogen
Memantine
Herbs
Gingko, Ginseng, and Phosphatidyl Choline
Huperzine A
Sage
Other Research Areas
Brain Imaging Techniques
Reviving Brain Cells
Head Injuries
Glia Cells
Helping to Fund Hope
Appendixes
Glossary
Further Reading
Community Resources
Online Resources
Index