Genetics and Ethics in Health Care : New Questions in the Age of Genomic Health

ISBN-10: 1558102639

ISBN-13: 9781558102637

Edition: 2009

Authors: Rita Black Monsen, American Nurses Association Staff

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This monograph explores current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives. While these advances are at the cutting edge of understanding the causal factors of health and illness, they also demand that we acknowledge and respect the deeply complex and diverse moral and ethical concerns that can impact the decisions of individual patients and the lives of their families and communities.
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Book details

Copyright year: 2009
Publisher: American Nurses Publishing
Binding: Paperback
Weight: 2.2
Language: English

Prologue Genetics and Genomic Health Care: The Mission and Aims of the National Human Genome Research Institute and Its Potential Impact on Clinical Practicesp. vii
Introduction Genetics and Ethics in Nursing: New Questions in the Age of Genomic Healthp. xiii
Coda Genetics and Genomics in Historical Context A Brief History of the Early Days of Clinical Geneticsp. xix
How Far We Have Comep. xx
Genetics, Genomics, and Ethics: Basic Considerationsp. 1
The ANA Code of Ethicsp. 5
Integrating Ethical Guidelines with Scope and Standards of Genetics and Genomics Nursing Practicep. 13
Shaping Genetic Policy: The United States Initiativesp. 27
Principles of Healthcare Ethics for the Twenty-first Centuryp. 53
Redefining the Conventions of Informed Consent: Challenges in the Genomic Erap. 65
Genetic Inheritance, Identity, and the Proper Role of Nursingp. 79
Danger and Genomic Technologiesp. 97
Religious and Cultural Perspectives of Communities and Societiesp. 103
Hinduism and Sikhism: Genetic Counseling Aspectsp. 109
"Every Generation...": A Jewish Approach to Questions of Genetic Research, Testing and Screening, and Gene Therapyp. 129
The Catholic Church Views on Genetic Testing: Indications for Genetic Counselorsp. 141
Attitudes of Muslims Regarding the New Genetics: Testing, Treatment, and Technologyp. 149
Genetics and Ethics from a Christian Perspectivep. 165
Native American Communities: Perspectives on Healthcare Geneticsp. 179
Hispanic/Latino Perspectives on Genetics and Ethicsp. 201
African American Perspectives on Genetics and Ethicsp. 213
Applications of Genetics and Genomics in Health Carep. 235
Concerns of Patients and Families Surrounding Genetic Testingp. 241
Parental Request for Advanced Directives: Decision-Making in Evolving Environmentsp. 251
Ethical Analysis of Genetic Testing in Childrenp. 265
Genetics and Ethics in Nursing: Cancer Prevention for Clients with Inherited Cancer Riskp. 285
Ethical Obligations to Patients Who Engage in Lifelong Self-surveillance for Genetic Risk of Cancerp. 301
Cystic Fibrosis: Screening, Testing, Ethicsp. 315
Genetic Testing and Counseling in Huntington Diseasep. 331
Case Studies in Genetics and Ethicsp. 345
Prenatal Case Studyp. 349
Sickle Cell Disease Case Studyp. 359
Case Study in Hereditary Breast and Ovarian Cancerp. 369
Hereditary Nonpolyposis Colon Cancer: A Case Study of Ethical Implicationsp. 385
The P Family, At Risk for Alzheimer's Diseasep. 397
Epilogue Genetics and Ethics in Health Care and Nursingp. 407
Glossary of Termsp. 417
Acronymsp. 423
Contributor Biographiesp. 429
Indexp. 443
Table of Contents provided by Ingram. All Rights Reserved.
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