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| Acknowledgements | |
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| Introduction: About This Book | |
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| Becoming Acquainted with Dementia | |
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| What is dementia? | |
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| The extent of dementia worldwide | |
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| Dementia in 'minority groups' | |
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| Can dementia be treated, cured or prevented? | |
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| The goals of supporting a person with dementia: quality of life and well-being | |
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| Being a family member or friend of a person with dementia | |
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| The basis of supporting a person with dementia: dementia empathy | |
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| What family members and friends need to support a person with dementia | |
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| How this book can help | |
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| Someone Close to Me May Have Dementia: Assessment, Diagnosis and Types of Dementia | |
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| Identifying dementia | |
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| The first signs of dementia | |
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| How people with dementia react to the onset of the condition | |
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| Diagnosing dementia | |
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| Why is diagnosis important and why do many people with dementia not receive a diagnosis? | |
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| Should the person with dementia be told the diagnosis? | |
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| After the diagnosis | |
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| The main types of dementia | |
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| Young-onset dementia | |
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| Neurological diseases that may include dementia among their symptoms | |
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| Beginning the Journey: The Early Phase of Dementia | |
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| The characteristics of early dementia | |
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| Dementia empathy and early dementia | |
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| Awareness and capacity in early dementia | |
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| Planning for the future | |
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| Maintaining relationships and keeping active in the phase of early dementia | |
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| Compiling a life story | |
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| Intimacy and sexuality | |
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| Maintaining and giving up independence in the early phase of dementia | |
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| Health and social care support for people with early dementia, their families and friends | |
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| Family members and friends: looking after oneself and each other | |
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| More Help Needed: The Phase of Moderate Dementia | |
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| The characteristics of moderate dementia | |
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| Where do people with moderate dementia live? | |
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| The changing nature of relationships | |
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| Communication and language in moderate dementia | |
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| Social and leisure activities for people with moderate dementia | |
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| Summary: principles of promoting activity with people with moderate dementia | |
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| The Challenges of Moderate Dementia | |
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| Behaviour that others find difficult | |
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| When the person lacks awareness that their actions will put them at risk of coming to harm | |
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| When the person's manner and actions indicate that they are in distress | |
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| When the person behaves in ways that are socially inappropriate | |
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| When the person tries to get their needs met by behaving aggressively or with hostility | |
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| When the person seems to be unwilling to accept help from others | |
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| The role of medication | |
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| Summary: how should family members and friends respond when they find a person's manner and actions difficult? | |
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| Challenges to eating and drinking | |
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| Meeting continence needs | |
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| Sleep disturbances | |
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| Professional support for people with moderate dementia, their families and friends | |
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| When people with dementia are admitted to hospital | |
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| Vulnerability and abuse | |
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| The Decision: Considering Residential Care for People with Dementia | |
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| Perceptions of residential care | |
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| What is residential care? | |
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| The decision | |
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| Choosing a care home | |
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| What should be expected of a care home? | |
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| Visiting a care home | |
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| Making the transition | |
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| Staying involved | |
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| Issues with residential care | |
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| Concerns about standards of care | |
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| Conclusion: care homes are places to live! | |
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| Completing the Journey: The Phase of Advanced Dementia | |
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| The characteristics of advanced dementia | |
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| Well-being and ill-being in advanced dementia | |
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| Relationships with a person with advanced dementia | |
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| Communication in advanced dementia | |
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| Activity and advanced dementia | |
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| Helping people with advanced dementia with activities of daily living | |
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| Approaching the end of life | |
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| The End of Life | |
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| What is meant by 'end of life'? | |
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| What causes death among people with dementia? | |
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| The feelings of family members and friends as end of life approaches | |
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| How would we want to die? | |
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| Dementia and end of life care | |
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| A good death? | |
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| Support after death | |
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| Conclusion: Suffering from Dementia or Living with Dementia? | |
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| References | |
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| Resources for Families and Friends | |
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| Index | |