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| Dedication | |
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| Acknowledgments | |
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| Introduction | |
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| What is Privileged Presence? | |
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| Why This Book? | |
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| What Matters in Health Care? | |
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| Why Stories? | |
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| Why These Stories? | |
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| Who is This Book for? | |
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| As Unique as Snowflakes: Responding to Individuals | |
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| I am Not a Patella | |
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| Aunt Mary | |
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| Respect for Dignity | |
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| Friends in Low Places | |
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| Who Will Walk the Dog? | |
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| Unriddling the Riddle | |
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| When Life is Threatened: The Importance of Support | |
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| Death-Life | |
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| Flying Blind in a Frightening World | |
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| Living the Opposites | |
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| The Journey of the Green Elephant | |
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| I Needed a Guide | |
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| Rise & Shine | |
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| A Profoundly Isolating Experience | |
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| His Name Means "Rise Above the Storm" | |
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| Natural Allies: Partnerships in Care | |
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| We Are Not Visitors in Her Life | |
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| Something's Wrong-Please Listen to Me! | |
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| That's What We're Here for | |
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| When the Brain is Broken | |
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| It Takes a Team | |
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| Investing in Information | |
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| It Just Comes Naturally | |
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| Awash in Disappointment | |
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| More Than Words: Feeling Heard and Being Valued | |
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| A Triple Win | |
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| Surgical Suspense on Sundays | |
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| The Healing Effect of Listening | |
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| Tattoo it on Our Hearts | |
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| An Enormous Burden is Lifted | |
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| Where's the Headache? | |
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| I'm the Full-Time Tenant of this Body | |
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| The Value of Asking Questions | |
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| Being Together: The Power of Family | |
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| I Want My Children with Me | |
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| Smiles Tell the Story | |
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| Olivia's Story | |
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| It Was as Hard as it Gets: The Impact of a Global Crisis on Family-Centered Care | |
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| It's Not About Time: Small Moments and Lasting Memories | |
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| Everyday Gifts | |
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| Lingering Effects | |
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| Simple Sentences | |
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| Making the Unbearable Bearable | |
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| She Sang Him His Life | |
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| The Magic of Music | |
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| Thanks for the Good Seats | |
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| Within a Single Day | |
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| Hope for the Future: Passion for the Possible | |
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| Learning from Tragedy | |
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| The Capacity to do Good | |
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| Finding Meaning in Chaos | |
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| It Doesn't Take Much | |
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| The White Coat | |
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| When the World Turns Upside Down: A Doctor Experiences Being a Patient | |
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| Creating a Culture | |
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| Reflections | |
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| Different Stories, Similar Echoes | |
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| To Fix, Help, or Serve | |
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| When One is Overwhelmed | |
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| The Intensity of Memories | |
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| Moving on | |
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| Building the Momentum for Change | |
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| Leading the Way: Key Organizations Devoted to Improving Care | |
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| Institute for Family-Centered Care | |
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| The Kenneth B. Schwartz Center | |
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| Other Organizations Contributing to the Momentum for Change | |
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| Useful Tools for Promoting Change | |
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| Patient- and Family-Centered Care: Definition and Core Concepts | |
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| You Have the Right to Compassionate Health Care | |
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| Partners in Care: Conversation Starters-A Tool to Facilitate Discussion | |
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| Key Questions to Ask | |
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| Educating Health Care Professionals: Approaches for Developing Patient- and Family-Centered Knowledge, Skills, and Attitudes | |
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| Sharing Personal and Professional Stories | |
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| Furthering the Case for Change: Selected Bibliography | |
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| Index | |