Rethinking Informed Consent in Bioethics

ISBN-10: 0521697476
ISBN-13: 9780521697477
Edition: 2007
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Description: In this book, the authors set debates about informed consent in medicine and research in a fresh light. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working  More...

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Book details

Copyright year: 2007
Publisher: Cambridge University Press
Publication date: 3/29/2007
Binding: Paperback
Pages: 228
Size: 6.00" wide x 8.75" long x 0.75" tall
Weight: 0.836
Language: English

In this book, the authors set debates about informed consent in medicine and research in a fresh light. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.

Paul Gorner is Honorary Senior Lecturer, University of Aberdeen. He is author of Twentieth Century German Philosophy (2000) and numerous articles.Neil C. Manson is Lecturer in Philosophy at the Institute for Philosophy and Public Policy, Lancaster University.

Preface
Acknowledgements
Consent: Nuremberg, Helsinki and beyond
Introduction
Beginning at Nuremberg
Extending scope: from research ethics to clinical ethics
Raising standards: explicit and specific consent
Improving justifications: the quest for autonomy
Regulatory reinforcement: consent requirements
Conclusion
Information and communication: the drift from agency
Framing informed consent
Two layers of distortion
Information and the drift from agency
What the conduit and container metaphors hide
Conclusion
Informing and communicating: back to agency
Agency
Communicative actions
Communicative norms
Two 'models' of information and communication
How to rethink informed consent
Introduction: two models of informed consent
Why consent transactions matter: beyond autonomy
Justifying consent transactions: consent as waiver
Scope and standards
Consent transactions: standards for communication
Consent transactions: commitments
Conclusion: consent in practice
Informational privacy and data protection
Informational privacy
Informational rights and obligations
Informational privacy as a right over content
Data protection legislation: second-order informational obligations
Rethinking informational privacy
Confidentiality: regulating communicative action rather than information content
Conclusion
Genetic information and genetic exceptionalism
Questions about genetic information
Genetic privacy and genetic exceptionalism
Is Genetic information contained within DNA?
Conclusion
Trust, accountability and transparency
Consent, paternalism and trust
Placing and refusing trust intelligently
Accountability, and trustworthiness
Accountability, trustworthiness and trust in biomedicine
Accountability with transparency
The structure of accountability
Some conclusions and proposals
Informed consent and epistemic norms
Informed consent and individual autonomy
Informed consent as waiver
Practices and policies for informed consent
After rethinking: the possibility of change
Bibliography
Institutional sources and documents
Index

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