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Woman Who Walked into the Sea Huntington's and the Making of a Genetic Disease

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ISBN-10: 0300158610

ISBN-13: 9780300158618

Edition: 2010

Authors: Alice Wexler

List price: $29.00
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Description:

When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a…    
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Book details

List price: $29.00
Copyright year: 2010
Publisher: Yale University Press
Publication date: 1/26/2010
Binding: Paperback
Pages: 288
Size: 0.61" wide x 0.93" long x 0.07" tall
Weight: 0.880
Language: English

Foreword
Acknowledgments
Introduction
Family/Community
The Death of Phebe Hedges
The Social Course of St. Virus's Dance
Community/Medicine
Inventing Hereditary Chorea
Chorea and the Clinical Gaze
Medicine/Eugenics/Memory
The Eyes of
Myths of Origins and Endings
List of Abbreviations
Notes
Index