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| Dedication | |
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| Acknowledgements | |
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| About the Author | |
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| Introduction | |
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| Where to Begin | |
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| Introduction | |
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| Guiding Principles of End of Life Care | |
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| Core Nursing Responsibilities: Skilled Clinician, Advocate, and Guide | |
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| What Do Patients and Families Want for Care at the End of Life? | |
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| When Do We Start Providing End of Life Care? | |
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| A Team Approach | |
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| Advance Care Planning | |
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| The Courageous Conversation | |
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| Skilled Clinician: Understanding the Elements of Advance Care Planning | |
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| Advance Directives | |
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| A Note on DNR/DNI Status and POLST Forms | |
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| Advocating in Advance Care Planning: Making Sure Wishes Are Honored | |
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| Guiding in Advance Care Planning: Recognizing the Common Barriers | |
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| Common Questions Patients Ask About Advance Directives | |
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| Cultural Considerations in Advance Care Planning | |
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| Pain Management: It's More Than Knowing the Meds | |
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| Listening to the Patient's Pain | |
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| Skilled Clinician: Assessment and Management of Pain | |
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| Advocating: Ensuring That the Patient's Pain Relief Goals Are Met | |
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| Guiding Patients and Families: Addressing Common Fears | |
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| Know the Resources | |
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| Physical Symptom Management | |
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| Common Symptoms | |
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| Skilled Clinician: Assessment and Management of Common Symptoms | |
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| Advocating: Linking the Needs of the Patient and Family to the Health Care System | |
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| Guiding Patients and Families: Preparing, Listening, and Assuring | |
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| Suffering: It's Not Just the Pain | |
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| What Is Suffering at the End of Life? | |
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| Skilled Clinician: Assessing Suffering | |
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| Advocating for Patients: Ensuring a Holistic View | |
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| Guiding Patients and Families: Start with Yourself | |
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| Active Dying: The Final Days and Hours | |
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| Active Dying: What Does It Mean? | |
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| Skilled Clinician: Assessing and Intervening When Death Is Near | |
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| Advocating for Both the Patient and Family: Communication Is the Key | |
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| Guiding: Walking That Difficult Path | |
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| A Note on Withdrawing Life-Sustaining or Life-Extending Treatment | |
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| After the Death: The Long Journey to the Car | |
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| What Happens after a Patient Dies? | |
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| Skilled Clinician: Understanding Grief | |
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| Advocating for the Family: Accommodating Their Comfort Needs | |
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| Guiding the Family: Accepting the Loss | |
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| Self Care | |
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| When a Child Is Dying: Pediatric End of Life | |
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| Children Die, Too | |
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| Skilled Clinician: Assessing and Intervening in the Care of Children | |
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| Advocating for Children: Meeting the Needs of Both the Patient and the Family | |
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| Guiding Children and Families: Understanding the Needs of the Child | |
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| Cultural Sensitivity: Looking through Different Eyes | |
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| Making Room for Cultural Diversity | |
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| Understand Your Own Beliefs | |
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| Listen to the Patients | |
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| Avoid Stereotyping and Making Assumptions | |
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| Use Trained Medical Interpreters | |
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| Use Community Resources | |
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| Advocating for Patients and Families | |
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| Hospice | |
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| A Philosophy of Care | |
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| Who Qualifies for Hospice Care? | |
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| How Do I Approach Patients and Families about Hospice Care? | |
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| The Hospice Medicare Benefit | |
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| Advocating for Your Patients | |
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| Ethical Issues in End-of-Life Care | |
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| Health Care Ethics | |
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| Common Ethical Dilemmas and Conflicts | |
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| Role of the Skilled Clinician in Difficult Decisions | |
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| Advocate: Making Sure Wishes Are Honored | |
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| Guide | |
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| What about a Nurse's Personal Ethics, Beliefs, and Values? | |
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| Ethics and Culture | |
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| A Final Note: Taking Care | |
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| Burning Brightly, Burning Dimly | |
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| Living in the Present Moment | |
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| The Joy and the Laughter | |
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| A Final Note | |
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| Index | |