| Prologue Genetics and Genomic Health Care: The Mission and Aims of the National Human Genome Research Institute and Its Potential Impact on Clinical Practices | p. vii |
| Introduction Genetics and Ethics in Nursing: New Questions in the Age of Genomic Health | p. xiii |
| Coda Genetics and Genomics in Historical Context A Brief History of the Early Days of Clinical Genetics | p. xix |
| How Far We Have Come | p. xx |
| Genetics, Genomics, and Ethics: Basic Considerations | p. 1 |
| The ANA Code of Ethics | p. 5 |
| Integrating Ethical Guidelines with Scope and Standards of Genetics and Genomics Nursing Practice | p. 13 |
| Shaping Genetic Policy: The United States Initiatives | p. 27 |
| Principles of Healthcare Ethics for the Twenty-first Century | p. 53 |
| Redefining the Conventions of Informed Consent: Challenges in the Genomic Era | p. 65 |
| Genetic Inheritance, Identity, and the Proper Role of Nursing | p. 79 |
| Danger and Genomic Technologies | p. 97 |
| Religious and Cultural Perspectives of Communities and Societies | p. 103 |
| Hinduism and Sikhism: Genetic Counseling Aspects | p. 109 |
| "Every Generation...": A Jewish Approach to Questions of Genetic Research, Testing and Screening, and Gene Therapy | p. 129 |
| The Catholic Church Views on Genetic Testing: Indications for Genetic Counselors | p. 141 |
| Attitudes of Muslims Regarding the New Genetics: Testing, Treatment, and Technology | p. 149 |
| Genetics and Ethics from a Christian Perspective | p. 165 |
| Native American Communities: Perspectives on Healthcare Genetics | p. 179 |
| Hispanic/Latino Perspectives on Genetics and Ethics | p. 201 |
| African American Perspectives on Genetics and Ethics | p. 213 |
| Applications of Genetics and Genomics in Health Care | p. 235 |
| Concerns of Patients and Families Surrounding Genetic Testing | p. 241 |
| Parental Request for Advanced Directives: Decision-Making in Evolving Environments | p. 251 |
| Ethical Analysis of Genetic Testing in Children | p. 265 |
| Genetics and Ethics in Nursing: Cancer Prevention for Clients with Inherited Cancer Risk | p. 285 |
| Ethical Obligations to Patients Who Engage in Lifelong Self-surveillance for Genetic Risk of Cancer | p. 301 |
| Cystic Fibrosis: Screening, Testing, Ethics | p. 315 |
| Genetic Testing and Counseling in Huntington Disease | p. 331 |
| Case Studies in Genetics and Ethics | p. 345 |
| Prenatal Case Study | p. 349 |
| Sickle Cell Disease Case Study | p. 359 |
| Case Study in Hereditary Breast and Ovarian Cancer | p. 369 |
| Hereditary Nonpolyposis Colon Cancer: A Case Study of Ethical Implications | p. 385 |
| The P Family, At Risk for Alzheimer's Disease | p. 397 |
| Epilogue Genetics and Ethics in Health Care and Nursing | p. 407 |
| Glossary of Terms | p. 417 |
| Acronyms | p. 423 |
| Contributor Biographies | p. 429 |
| Index | p. 443 |
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