Forever Fix Gene Therapy and the Boy Who Saved It

ISBN-10: 1250015774
ISBN-13: 9781250015778
Edition: 2013
Authors: Ricki Lewis
List price: $16.99 Buy it from $10.64
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Description: Fascinating narrative science that explores the next frontier in medicine and genetics through the very personal prism of the children and families gene therapy has touched.Eight-year-old Corey Haas was nearly blind from a hereditary disorder when  More...

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Book details

List price: $16.99
Copyright year: 2013
Publisher: St. Martin's Press
Publication date: 1/8/2013
Binding: Paperback
Pages: 336
Size: 5.25" wide x 8.25" long x 1.25" tall
Weight: 0.660
Language: English

Fascinating narrative science that explores the next frontier in medicine and genetics through the very personal prism of the children and families gene therapy has touched.Eight-year-old Corey Haas was nearly blind from a hereditary disorder when his sight was restored through a delicate procedure that made medical history.  Like something from a science fiction novel, doctors carefully injected viruses bearing healing genes into the DNA of Corey's eyes—a few days later, Corey could see, his sight restored by gene therapy.THE FOREVER FIX is the first book to tell the fascinating story of gene therapy: how it works, the science behind it, how patients (mostly children) have been helped and harmed, and how scientists learned from each trial to get one step closer to its immense promise, the promise of a "forever fix," - a cure that, by fixing problems at their genetic root, does not need further surgery or medication.Told through the voices of the children and families who have been the inspiration, experimental subjects, and successes of genetic science, THE FOREVER FIX is compelling and engaging narrative science that tells explores the future of medicine as well as the families and scientists who are breaking new ground every day.

Ricki Lewis has built an eclectic career in communicating the excitement of geneticsand genomics. She earned her Ph.D. in genetics in 1980 from Indiana University.It was the dawn of the modern biotechnology era, which Ricki chronicled in manymagazines and journals. She published one of the first articles on DNA fingerprintingin Discover magazine in 1988, and a decade later one of the first articles on humanstem cells in The Scientist.Ricki has taught a variety of life science courses at Miami University, the Universityat Albany, Empire State College, and community colleges. She has authored orco-authored several university-level textbooks and is the author of The Forever Fix:Gene Therapy and the Boy Who Saved It, as well as an essay collection and a novel .Ricki has been a genetic counselor for a private medical practice since 1984 and isa frequent public speaker. Since 2012, Ricki has written hundreds of news storiesfor Medscape Medical News, articles for Scientific American and for several geneticdisease organizations, and originated and writes the popular weekly DNA Scienceblog at Public Library of Science.Ricki teaches an online course on “Genethics” for the Alden March Bioethics Instituteof Albany Medical College. She lives in upstate New York and sometimes Martha’sVineyard, with husband Larry and several felines. Contact Ricki at rickilewis54@gmail.com , or join the discussion on DNA Science at http://blogs.plos.org/dnascience/ .

Preface
The Best That Can Happen
Meeting Corey
The Road to a Diagnosis
What's Wrong with Corey?
The Worst That Can Happen
The Breakthrough Myth
Jesse and Jim
Tragedy
Evolution of an Idea
The SCID Kids
Setbacks
Lorenzo and Oliver
Before Gene Therapy
Hannah
Lori
After Gene Therapy
Amazing Women
The Jewish Genetic Diseases
The Patent Predicament
Chasing Moonbeams
Corey's Story
Kristina's Dogs
Lancelot
Success!
Back to Chop
The Future
Epilogue
Notes
Acknowledgments

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