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    Connected Self The Ethics and Governance of the Genetic Individual

    ISBN-10: 1107008603
    ISBN-13: 9781107008601
    Author(s): Heather Widdows
    Description: Currently, the ethics infrastructure - from medical and scientific training to the scrutiny of ethics committees - focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an  More...
    Buy it from: $98.76
    This item will ship on Monday, February 2 .

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    Publisher: Cambridge University Press
    Binding: Hardcover
    Pages: 216
    Size: 6.50" wide x 9.50" long x 0.75" tall
    Weight: 0.968

    Currently, the ethics infrastructure - from medical and scientific training to the scrutiny of ethics committees - focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an effective ethical tool in public ethics and is particularly problematic in the governance of genetics. Heather Widdows suggests using alternative and additional ethical tools and argues that if individuals are to flourish it is necessary to recognise and respect communal and public goods as well as individual goods. To do this she suggests a two-step process - the 'ethical toolbox'. First the harms and goods of the particular situation are assessed and then appropriate practices are put in place to protect goods and prevent harms. This debate speaks to core concerns of contemporary public ethics and suggests a means to identify and prioritise public and common goods.

    The individual self and its critics
    The individualist assumptions of bioethical frameworks
    The genetic self is the connected self
    The failures of individual ethics in the genetic era
    The communal turn
    Developing alternatives: benefit sharing
    Developing alternatives: trust
    The ethical toolbox part one: recognising goods and harms
    The ethical toolbox part two: applying appropriate practices
    Possible futures

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